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Mayson Boerm continues his fight

Mayson Boerm continues his fight
Mayson Boerm

Mayson Boerm is a fighter, and that’s what he needs to be to overcome the obstacles he faces.

Born prematurely, Mayson has cerebral palsy. Family and friends will hold a benefit Jan. 29 to help with his ongoing medical expenses.

Mayson’s parents, Amy and Stephen Boerm, knew they wanted to start a family right away after they were married. Amy got pregnant with Mayson Lee shortly after.

“I had a fairly normal pregnancy morning sickness, mood swings, and cravings,” Amy said.

But the delivery was not “normal,” as Amy had hoped. She was only seven months pregnant when she went into labor.

“Most moms are happy to be in labor and happy to be giving birth, but I was so scared for my baby’s life,” Amy said.

Doctors prepared Amy and Stephen for potential problems their child could have, due to his early birth.

Mayson was born on May 7, 2009. He weighed 2 pounds, 14 ounces, and was 15 inches long. He had to stay in the neonatal intensive care unit for the first two months of his life.

While he was still in the hospital, Mayson was diagnosed with periventricular leukomalacia (PVL), a condition caused by a lack of oxygen or blood flow to the periventricular area of the brain. It results in the death or loss of brain tissue.

Children with this condition are at risk for motor disorders, delayed mental development, and vision and hearing impairments, according to Amy.

“After we were told Mayson had this condition, it just made Stephen and I fight even harder for our son,” Amy said.

On June 20, 2009, Mayson was released from the hospital to go home. For the first year of his life, Mayson stayed inside, except for medical appointments. He had a very weak immune system and anything could make him ill, his mother said.

Each month, Mayson needed a shot to prevent the respiratory syncytial virus (RSV). According to, the virus causes infection of the lungs and breathing passages and is a major cause of respiratory illness in young children. The shot cost the family about $10,000 over six months.

Despite medical expenses and frequent trips to the doctor and the hospital, Amy said the family’s lives were great.

“We spent hours and hours holding our baby boy, loving him and giving him so many kisses,” Amy said.

In April 2010, Mayson was diagnosed with cerebral palsy.

“We felt like we were hit by a freight train,” Amy said.

The doctor told the family that Mayson would never walk or talk.

Amy decided that from that moment on, she would be Mayson’s advocate.

“He will walk and he will talk and he will do all the things that normal kids do,” Amy said.

Mayson is now 20 months old and “growing like a weed.” He weighs 25 pounds and is learning how to sit up and say words, his mother said.

“I don’t know every obstacle that we will have to face, and I’m sure there will be many, but I do know that I will be there every second to pick him up when he falls, love him when he cries, and always support him,” Amy said.

Mayson’s family and friends will have a benefit rummage sale on Saturday, Jan. 29, from 8 a.m. to 6 p.m. in the St. Mark Lutheran Church, located at 10595 U.S. 87 South in Adkins. For more information, call Patty Jarratt at 210-279-2605.

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